Fab Boys Adventures

Have I really not blogged in three days??? Man, I've been slacking. I'm going to keep this short, because Andrew over did it today and is having a pretty hard time. It's sad, because he's been doing pretty great with everything. Tonight was the SMA Candle lighting. Really quiet night, except checking on my friend's cat. Her name is Claire, and she's adorable.  Feeling a little somber with the candle lighting. It's for all of the SMA warriors, but I tend to think of the angels the most in lighting it. The road they paved, the fight they fought, and just how deeply they're loved and missed.💗

What a freakin' day! Liam had a great day, and I'm grateful for that sweet little sassy pants.  Poor Andrew J ended up coming home with an ankle and foot sprain. I'm mad at myself for taking so long after he got home from school to realize he was limping. I didn't really think much of his walking. I thought he was just preferring to walk flat footed in that moment. As much as I wish he didn't have to go through all of this, I am so thankful how smoothly it went. We called ahead of time to make sure they'd be okay seeing him, because clinicians around here get a little bit flippy about seeing kiddos with disabilities. Every. Single. Person. Every single person we came in contact with tonight was just SO wonderful. Even the receptionist acknowledged his sensory issues, and offered without being asked, for me to hold his bracelet instead of trying to put it on him. They were all so supportive and encouraging. They were all patient, kind, and compassionate, to put i...

I forgot to blog yesterday! Whoops. I was so exhausted after dancing my heart out the night before, hahaha. Today was a good day! We were supposed to have a planned power outage for line maintenance, but that never happened. I think that means it'll happen tomorrow.  My favorite part of today was right before I had to start the bedtime routine. Scott got stuck late at work, so I was solo with the boys. Andrew was playing with his big blue ball, and started throwing it to me. While Liam was watching us, he was laughing his tail right off. I thought since he was enjoying watching so much, he'd like to join in. I handed him the ball to "catch," and kept egging him on to throw it. Eventually he pushed it off of his lap back to me, and he was so proud of himself! Rightfully so. That turned into all three of us spending 45 minutes straight throwing the ball to each other. (Neither of them EVER spend 45 minutes straight doing anything at all, bahahaha) They even threw it bac...

I got to go see Gavin DeGraw again tonight!!!!!!!! I haven't seen him since I was a teenager.  His music has always been so healing to me. It was an escape during my teenage years, without a doubt. I'm so, so grateful to have been able to see him again! So talented. This is the only picture I got, because the rest were videos. Maybe I can edit to include the set list once it's released🙂

Today started off really great. Gram came to visit and Michael came to do respite with Andrew. Both of the boys had a fabulous day with great moods all around. Gram and I usually check in with each other before bed, but she called me a lot earlier than usual today. She called to tell me that my mother called her. As her and I were talking on her cellphone, my mother called her on her landline again. I heard her say some pretty awful things to my Gram, but she held her composure really well. I truly don't understand how someone so heinous came out of someone so incredible. My Gram is an angel on this planet. I just don't get it. I'm beyond grateful she and I have been able to repair and create the relationship we have now after all of the years we spent apart.  I've had a pit of anxiety in my stomach since I heard my mother's voice. I just wish she'd leave every one of us alone. It's like she can't handle peace and no chaos. I hate that she still has the ...

Super crazy day today! I had a meeting with Liam's care coordinator on top of his regular therapies.  Plus I went to go help Gram set up her new router and modem. Everything went super smoothly, until we realized her landline didn't connect properly. That was a headache and a half! Glad we were able to get it all sorted for her. Andrew had his third great (direct quote!!!) day at school in a row! I'm so excited for him. I hope the break between summer services and the beginning of the school year doesn't fuss with his groove too much. They sent home this crown that he made today, and my heart can't handle how adorable it is. I'm also getting so excited for Sunday! My sister is coming into town. Her and one of my greatest friends are going to see Gavin DeGraw at the Spiedie Fest! I haven't seen him in concert since I was in braces, but my love for him has never wavered, bahahahaha. I can't wait!

Today was a really rough day for Liam. He was up all hours of the night, uncomfortable from his digestive issues, and only took about an hour nap this morning. I finally got him to pass what he needed to, but he ended up so overly exhausted that he's sleeping pretty restlessly now. I hope he can finally calm and get some desperately needed rest.  Andrew's teacher said he had an even better day than yesterday, plus his bus driver said he did great today. I love when he shows them how sweet he is, so much. Tomorrow should be good for him again, because it's his favorite day of the week; water day. That's all for tonight. I'm going to grab some sleep while the getting is good, hahaha.

Another mundane day today. I'll take it. Liam has been getting a kick out of scaring his SLP. He kind of hurries his breathing to be silly, and she asked me why his breathing was so labored. I explained to her that he was doing it on purpose, but once he heard her say she got anxious, it was game over. He even went as far today to stare at her until she looked at him, and the second she looked at him, he stared in her eyes as he started the silly breathing back up. He's such a stinker, and I love every second of it. Andrew's teacher told me he had a great day, too!  I have to go finish paperwork to renew Liam's medicaid and some paperwork for Andrew's next IEP meeting, so that's all for today. My friend made me a picture for Liam for SMA Awareness Month today, and I really love it, so I'm going to include that, too.

Welp, I forgot to blog last night. It happens I suppose, hahaha. It's the first day of SMA Awareness Month! Today was a pretty uneventful day. Finally got Liam to go to the bathroom the way he needed to, so that's helped his demeanor a lot.  Andrew tried biting himself at school today, but aside from that had a really great day. Not only does it surprise me because we haven't seen that behavior from him in such a long time, but he woke up in such a fabulous mood! He was being such a goofball. He didn't want to wake up, so I laid it on thick "trying to find him." It was only when I pretended to go to sleep half laying on his (entirely covered, head and all) body, that he starting laughing his butt off and sat up. That was a really great way to start the day.🙂 I just got done fighting with a jump drive to try to get pictures onto Liam's dynavox for Speech tomorrow. The jump drive I used had our wedding photos on it. Seeing pictures of me with my dad made me...