Day two!

 Today ended up being a really wonderful day! 

Liam and I virtually attended an SMA friend's celebration of life today. Scott was watching for most of the time, and Andrew even popped in quickly, too, albeit in between causing trouble.

Connor, the beautiful life that was being celebrated, loved the color purple and The Beatles. (I mean, who doesn't??) Since I couldn't find a Beatles shirt that would fit Liam, he wore a CureSMA shirt and a purple bandana as a scarf. I wore one of my Sgt. Pepper's shirts and a purple bandana, too. 

The whole party was just beautiful. His mom even took the laptop around to show us everything. Everything was perfect.

Liam didn't really understand what was going on, so he mainly focused on trying to show everyone his counting skills, waving up a storm, and getting giddy when he saw his friends' faces who were watching, too. It's weighing pretty heavily on my mind how much I need to make him meeting someone else with SMA in person happen.

I'm really grateful we had the opportunity to "know" (again, the whole, "not getting to meet people in person" thing) Connor, and so many others. If it weren't for other SMA parents and social media, life would probably (definitely) look a lot different for us. 

Liam is one of the first faces for the "new generation" of SMA. When he was diagnosed, we had half of the doctors telling us he wouldn't live a good quality of life, and the other half acting as though he wouldn't be impacted by SMA, which led to insufficient care for him. Both the older folks with SMA and their parents paved the way for people around Liam's age and everyone since then. They fought the doctors who wouldn't listen, and with much less readily accessible knowledge of the proper care of SMA. They fought to prove what care worked, and what care didn't. They helped parents like Scott and I find our voices. There aren't enough words to properly express not only how thankful I am for that, but for the welcoming arms into the family you never expected to be a part of.

Tonight, and many other nights before this, I hugged my guys a little tighter. That, and I made sure The Beatles were playing strong, too.  Thank you for being you, Connor.💜

This is a lot longer than I anticipated it being, but it also felt really good to type all of that out. I thought this would just be amazing to be able to look back at the things we've done, but it's also looking like it's going to be pretty therapeutic!

I forgot to get a picture of Liam looking adorable in his get up, but I'll try to add a picture of my shirt, at least.